Friends and family of a young northeast Johnson County resident are asking the community to come together at Friday’s Shawnee Mission East-Shawnee Mission North football game and offer hope in the boy’s battle against a debilitating illness.
Bo Macan, the 4-year-old son of northeast Johnson County residents John and Carolyn Macan, suffers from a rare genetic condition called IPEX syndrome. The disease causes multiple autoimmune disorders that can hamper the intestines, skin and various glands. Bo has been in the hospital for more than 100 days as a result of the condition.
Physicians believe that a bone marrow transplant could help Bo’s immune system stabilize. Bo’s mom and dad as well as his aunts and uncles — all SM North grads — will be hosting a bone marrow registry at the game Friday. They hope their “Be the Match” registry might help connect Bo with a possible marrow donor — and provide similar hope for others needing marrow transplants.
Bo was initially scheduled to have a transplant last year at Cincinnati Children’s Hospital, but tests revealed Bo’s system was too weak for the procedure. For a while, it looked like Bo might never be a good candidate for the transplant that doctors think offers his best shot at significant recovery. But recently tests gave doctors hope that a transplant might not be out of the question for him.
For more information on the drive and how to determine if you’re eligible to give, click here.
For more information on the Macans, check out their website here.